THE ETHAN PERKINS TRUST
FIGHTING CHILDHOOD BRAIN TUMOURS

Registered No: 1131071

 

 

Welcome to The Ethan Perkins Trust

 

This is a website in memory of our gorgeous 11 year old son, Ethan Matthew Perkins. Ethan was diagnosed with a brain tumour in May 2008, aged 10 years old. The brain tumour he was diagnosed with is called dipg (diffuse instrinsic pontine glioma). Diffuse pontine gliomas account for 10-15 percent of all childhood central nervous system tumors. There are no known factors or conditions that predispose an individual to the development of diffuse pontine gliomas. There is no surgical option in the treatment of these tumors. Because they are difficult to treat, the outcome for brainstem gliomas is poor. After diagnosis, the survival time is on average 9 to 12 months. Sadly Ethan's fight with this monster tumour ended on 8th January 2009.

 

Horrified by the lack of funding for research and the prospect that it is unlikely that a cure will be found, Ethan's family and friends have set up the Trust with the objective of raising funds for research, support and awareness into childhood brain tumours. Cancer Research UK spent £983,272 on all children’s glioma projects for 2007- 08. This means less than 0.3% is spent on children’s brain tumour research. More children now die from a brain tumour than any other childhood cancer, 40% of all cancer deaths in children are from a brain tumour.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Copyright @2009 The Ethan Perkins Trust, a non profit organisation. All rights reserved